Design and implementation of a new data governance model in the era of digital health; PULSAR as a testing ground for responsible innovation

The aim of this project is to develop a data governance model that fosters responsible innovation for the benefit of all its stakeholders (citizens, researchers and policy-makers) for Université Laval's PULSAR ecosystem, which plays a central role in managing research data collected with relatively broad consent to study sustainable health. This project involves 1) identifying data governance models and mechanisms compatible with PULSAR's open scientific philosophy, 2) measuring the acceptability of these models and mechanisms with all stakeholders, and 3) developing and implementing a data governance model adapted to the PULSAR ecosystem.

Main researchers

Co-researchers

Mélanie Bourassa Forcier

Full Professor
Faculty of Law
École nationale d'administration publique (ÉNAP)

Patrick Archambault

Collaborators

Jean-Noé Landry

Conseiller stratégique

Carole Artault-Noury

Directrice exécutive

Félix Desrosiers

Analyste
Équipe de Pulsar

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